Familial Hypophosphatemia or

Vitamin D Resistant Rickets

Archives

This page provides a password-protected link to the archives

produced by members of the F-HYPDRR mailing list. These archives include:

  • anecdotal descriptions of individual experiences of the syndrome, as well as
  • collated discussions and data on dental problems,
  • tips for genetics testing,
  • tables describing conventional medications used in this syndrome
  • alternative vs conventional approaches.

In addition, for public consumption, we are happy to highlight important topics under discussion in the list, as for example, this abstract describing the Clinical Course of the syndrome in 23 adults, which recommends continued therapy throughout adulthood.

We welcome your subscription to this free mailing list, but please do not bother to click through the password-protected link unless you are a member.